Because you asked…

I wanted to emphasize here that I started writing these posts as many folks have asked me what is it like having an invisible chronic condition and fibromyalgia.  And if I am to be honest, I have to say what it really feels like, which no one really wants to hear I do not think.  Because no one, not even myself, can relate to something they either have never felt or experienced.  Wide spread pain, as they say in the commercials, is a cute phrase but really does not pin the tail on the donkey.  Fibromyalgia is oh so much more than that and then some!

Then there are all these folks you know out there who insist if you would only do ______, or quit doing ______, you would be cured or never have gotten the disease in the first place!  My goodness can you imagine the money they would make if only it were true?  A cure for fibromyalgia in their hands all this time.  And those of us who do not get better have only ourselves to blame of course.  It is so much easier for these folks to lay the blame on you than to show empathy.  To dismiss you as being in control of giving yourself pain, non-stop, never ending, not to mention all those other so much more symptoms…  It certainly makes it easier for them to not have to offer any assistance because if you would just do this or that you would be fine and able to do everything yourself.

I do apologize if this sounds a bit cynical, but I can truly attest that I have those folks, and quite a number of them as a matter of fact, in my family, in my friends and acquaintances, who are certain I could cure myself using their advice.  But here is a little something to think about, Chronic Fatigue Syndrome and Fibromyalgia are suspected to be an autoimmune disease which is the activation of the body’s immune system against the body itself.  diabetes type 1, rheumatoid arthritis, psoriasis, scleroderma, and the list goes on are autoimmune diseases.  About 50 million Americans, the majority of which are women suffer from autoimmune ailments.  Can you imagine somebody telling a type 1 diabetic that if they would only ____, or never had done ______, they would be cured?

In all honesty, I can honestly say, this is the worst part of this disease.  Suffering through all those folks who think they are doing yo u a favor by judging you and blaming you for having Fibromyalgia in the first place.  I will continue to post my thoughts as I wade through life with this disease but remember to try and walk a mile in the other persons shoes before you lower the gavel.

Peace,

Cindy

 

About C. Matusky

Owner of retail online store selling items for gifts and to help folks like myself who have chronic pain conditions.
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